....and now we wait to see if the babies survived the surgery."
Those were the words I heard one year ago today as the doctor finished up the in utero twin to twin transfusion syndrome surgery to save my babies lives.
One year ago today we were far away from family and friends, alone in a strange hospital preparing to undergo a risky life saving surgery for our unborn baby girls,
a surgery that would not have been possible even 5-10 years ago.
We were told on monday of that week at our check up that we needed to be in California by wed. and would have the surgery thursday, so it was a whirlwind of information and trying to cope with it all so quickly was hard. I remember Kris and I watching THIS video of the surgery that we would be undergoing (this was even our doctor in the video) and just weeping and telling eachother how scared we were.
I watched this video again today for the first time since before the surgery and wept as I saw exactly what I went through. Each step of the video brought back all the feelings of that day. Seeing Dr. Chmait again in this video made me cry tears of gratitude for him and the medical profession that made this surgery possible. Without this procedure, and without this doctor, my baby girls would have died.
The day before the surgery, we had arrived in LA and met with the doctors for our evaluation. As we sat in that waiting room looking at pictures of twins who had gone through this surgery, I couldn't help but worry and wonder if ours would be one of the survivors. As other patients ahead of us came out of the doctors office in tears because their prognosis was not good, I got even more scared. I had 3 miscarriages prior to this point and was so fearful of losing one or even both of these babies.
The night before we left for California we gathered our family around us for a family fast and priesthood blessing. It was one of the most incredible experiences to be able to tangibly feel our families faith and prayers in our living room that night. The spirit of the Lord was so very real and so very close that night as I received a blessing, and Kris received a blessing, to get us through this scary and uncertain trial.
We don’t know that we have ever felt the comforting spirit
of the Lord in our life and the calming influence of the spirit as much as we
did that night as our family met united in prayer and supplication to the Lord
on behalf of these two little babies that we hadn’t even met at that time.
Today we
know that the outcome was truly a miracle from the Lord and we are forever
grateful for all those of you who excercised your faith on our behalf. I remember sitting in the hotel room the night before the surgery, with tears rolling down my cheeks as I read comments, prayers and well wishes from so many of you and once again being so thankful for all the good people in my life, both those who I know in person and those who I know via the internet. We truly felt of the many prayers sent out for our babies that day!
This was our baby announcement/thank you card that I realized I never posted online to thank all those of you who were a part in helping our babies arrive safely. Through prayers, meals, cards, packages, showers, errands, etc. We THANK YOU from the bottom of our hearts! It truly was because of your help that we were blessed with our double miracle!
This was our baby announcement/thank you card that I realized I never posted online to thank all those of you who were a part in helping our babies arrive safely. Through prayers, meals, cards, packages, showers, errands, etc. We THANK YOU from the bottom of our hearts! It truly was because of your help that we were blessed with our double miracle!
I was awake through the surgery and it felt like an eternity from the time the surgeon started until I heard him say "we are done, and you are now cured of TTTS". As the surgery started, I was able to look at a monitor next to my head and I could see inside my uterus. I could see my babies at 20 weeks. I could see the dark water filled home my babies were growing in. I could see the life that was inside of me and it was amazing!
I could see the hands, and feet of my unborn baby girls, and I could hardly control my emotions as I prayed for those little lives. I watched as the doctor surveyed the situation inside my placenta and as he made note of all the blood vessels that were connecting that shouldn't be, and those were the ones he would laser to divide them. There were a lot of them that needed fixing!
Then the monitor was turned off and glasses were put over my eyes and all I heard for the next hour or so (although it felt like days) was the blast of the laser and the doctors giving instruction to one another. I literally held my breath through each laser blast and prayed "please Heavenly Father bless my babies to survive this, please bless this to work"
When I was laying all alone on an operating table in California, watching through a monitor as my unborn baby girls were holding on to life , I remember being more scared and feeling more alone than I have ever felt in my whole life. Kris was not allowed to be in the operating room with me and everything was out of my control at this point. All I could do was helplessly lay there and pray my heart out that the Lord would be with me to get us through this. At that moment when I had no one else, I had my Father in Heaven. I have never felt more grateful to know that He was there for me, then I did that day on that operating table. Once again, I learned that whenever fears and challenges come into our lives…our Father in Heaven will not leave us comfortless.
Towards the end of the surgery I heard the doctors rushing around a bit calling out commands, and I panicked thinking, "oh no something is happening to one of the babies." But it turned out they were just removing the extra liter of the amniotic fluid that had built up so high. The doctor then turned the monitor back on for me as he showed me the cotterized vessels in my placenta and told me it was over. When he came up by my head and said "Congratulations Kecia, you are now cured of twin to twin transfusion syndrome" I just wept and said "thank you".
When he met with Kris and I after the surgery he said " We have done what we can do and it went as well as we could have hoped, so now we wait. We all need to say a simple prayer tonight...that we find TWO heartbeats tomorrow morning when we do the ultrasound."
We were then moved up to a room where Kris was able to sleep in a bed next to mine, and we waited.
Probably the longest 24 hours of my life. Towards the evening I began to feel little movements in my stomach which gave me hope that things were ok, but I did not know if those little movements were just one or both of the babies. I was given some good meds for pain so I was able to sleep a little through the night, but Kris didn't. When we woke up, the nurse brought in a wheel chair and said it was time to go check on these babies. The moment of truth had arrived.
As I laid in the doctors office tightly holding Kris' hand watching the monitor as the doctor started the ultrasound, we held our breath.....
The room was silent as the doctor started surveying the babies and finally his voice said...
"There is one heartbeat....
and....
there is the second heartbeat.....
congratulations! Both babies survived the surgery."
Kris and I squeezed hands and cried!
The doctor told us that we were now to go home on full bed rest. We were not out of the woods completely because now we would have to wait and see how the babies learned to adjust to the new conditions and then hope they could make it as close to term as possible. We would also have to pray that my cervix continued to improve from the damage that the TTTS had caused it from all the extra pressure from the extra fluid, and hope that it would hold up for the rest of the pregnancy.
That day began our 5 months of bed rest. At the time it was hard, but we knew we could handle a few months of discomfort to have a lifetime with these girls.
4 days after the surgery we had a follow up appt with the perinatologist here and continued to see miracles. In just those few days, Baby A (Claire) fluid level had gone from .2 up to 3 and we could finally for the first time see her able to move freely in her sac! Before this point, she had always been as if she was suran wrapped and could not move so to watch her move easily, again brought us to tears! Her bladder had also started working again and showed up on the ultrasound. Baby B (Livvy) sac was also starting to lose fluid and rest closer to a normal level. The doctors could not believe what they were seeing. They new how things looked before the surgery and they could not believe how quickly things were looking up now. Another miracle!
Taken from my post a year ago "I can't even express in words my gratitude and the emotions we are feeling right now! we have truely witnessed a miracle and are so incredibly grateful for all the prayers, for this AMAZING Dr. Chmait, and for the Lord's hand in all of this! it is nothing short of a miracle...a huge one! As we thanked the doctor and his nurse it was hard because how do you adequately thank someone for saving your 2 babies lives??!!! There were really no words to use, just emotion and tears...lots of happy tears!!!"Dr. Chmait said we take one step at a time and now that we have this HUGE step behind us, we can focus on getting the babies to term...The babies are now cured of twin to twin transfusion syndrome and now we just need them to make it to term. We couldn't be more grateful."
Today, one year later, as I look at my little miracles, I often just cry. I am so grateful for the surgery that gave us a second chance with our babies.
As Livvy talks and coos to Claire, we can't help but think she was probably talking to her sister in utero as Claire was the one whose body started to shut down before the surgery, saying "its ok sis, they are going to fix us."
"Just hang on a little longer"
I am so grateful they fought together and were both able to be saved.

If you would have told me when I was growing up, or even when I was first married and starting to have children, that my family would have come to me the way it has, I would not have believed you.
I never imagined I would have a hard time bringing children to this earth, or that I would lose 3 pregnancies along the way.
I never imagined, or planned, on having two children with special needs,
I never imagined that one of my children would be brought into this world by someone else, but that I would travel around the globe to a 3rd world country to bring her home to her family,
I never imagined I would have
identical twin girls,
whose entrance into this world would teach me so much about love, service, compassion, and sacrifice.
But it was all part of the plan for our family.
"The road of life has many turns. Sometimes the road of life takes us to a place we had planned....sometimes it shows us a surprise around the bend we could never have anticipated. but often we find it is only when we look back that we can see that what we had thought was a "wrong turn" has brought us to exactly the right place and every step was a right one after all!"
10 comments:
You have been blessed by our Heavenly Father, and we are so very thankful that we have been able to share in your story.
Love seeing your family grow
Holly and Rachael
kecia I cannot believe the little ones have grown so much,WOW...beautiful as their big sisters
thank you for sharing your story again
Kecia, I loved reading your story. It sounds just like ours when we had the surgery with Dr. Chamit December of 2010. It really is amazing how these doctors are able to save these babies. I too was able to watch my babies on the monitor during the procedure and it was so unbelievable to see their little noses and hands and feet. Thanks for sharing your story!!
I have followed your blog via facebook since you were working to bring your daughter home because I have a nephew found thru RR. I love seeing pictures of your twins too; they are so beautiful! I never realized til now that you had TTTS. I had twin boys 19 years ago born at 19 1/2 weeks because they both passed due to cardiac arrest from TTTS. They had been diagnosed 2/14/1993 and I was sent to a perinatologist 3/3/1993. Both babies had passed before I even got to the appt:( I later found out that there was a Dr about an hour from us at the childrens hospital that was already doing the surgery at that time but it was still considered experimental. I am so happy to see they have such success with it now! Just an FYI I now have a second set of identical twin boys; they are 14 1/2. I have been told that identical twins do nut "run" in families but I am not sure about that! Congratulations on your beautiful family!
Such a beautiful post. It's so wonderful to read about all the miracles the Lord has lavished on your family. Loved all those pictures! Beautiful girls!
I needed to hear that miracle story again today! I'm 45 and fighting breast cancer. I need to beat this to be around for my 3 kids! Thanks for the reminder that miracles still happen. Love the pictures. Thanks for sharing your little joys.
Such a great story and testimony of how God has worked in your lives! Brought me to tears!
You have beautiful children!
I love the quote at the end. I am thankful every day that we met in Ukraine that one evening. Our red threads will be forever connected as we shared a similar journey to our girls. Happy Birthday, dear friend.
I'm so glad that everything worked out with Livvy and Claires opperation, they truely are the cutest miracles!
After seeing a friend post about a benefit he's doing for orphans w/ DS @ UofU, I read your story...and cried along. Then mention of your twin's "condition", I dug and read more, cried a little more. I have 6 yr TTTS survivors. I love how your family evolved. What a blessing.
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